In case anyone is interested, I just found a news article from September featuring six different Narcoleptic patient stories. The six people are from all over the US and their stories are very different.
You can either listen to a short sound clip from each person or browse a slideshow that summarizes each story. Each story is also accompanied by a few pictures, which adds a nice touch.
I thought it was very well done, and it was particularly interesting to me to see how each person has dealt with Narcolepsy.
Here is the link:
“The Voices of Narcolepsy,” The New York Times
You can also join in the discussion in the comments section of the site.
What do you think? Do you identify with one person in particular? Did you learn anything useful?
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1 comments:
I thought that was really well done. I wish there was more, though- like many resources on narcolepsy that I've seen (with your blog being an exception) they didn't talk about the dreams and hallucinations. After the exhaustion, of course, I feel like those symptoms are the ones that have had to most effect on me, but they tend to get neglected if you will. I did learn more about cataplexy which was good, as I'm lucky enough to not have it.
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