For years I thought I was just a bit weird, although I suppose I suspected that part of it might be my Narcolepsy. My dreams were just different than they are supposed to be. I normally could remember them, for one thing. They were almost always lucid dreams (i.e. I knew that I was dreaming when I was asleep), and I could do unusual things in my dreams, such as materialize objects, do magic, even rewind my dream to change it. I could also create my own dreams if I wanted, although it takes a lot of work to maintain control of a dream. For me, I try not to control my dreams too much these days because I think it affects the quality of my dreams. Lately, it seems like there are nights that I just dream non-stop and it is so exhausting.
Now, I don’t think that the average Narcoleptic has this experience, although Narcoleptics do tend to go into different stages of sleep at different times than non-Narcoleptics do. It is well known, for example, that one of the strange things about Narcoleptics is that they can take a nap during the day and go into REM and dreaming in just a few minutes. For me, I also find that my dreams are different during the day than at night; during the day they are often times more vivid.
However, I have heard from some other Narcoleptics on Talk About Sleep regarding lucid dreaming, and there were some other people who related that they too had lucid dreams at least some of the time and a few people said they have “dream powers.” Perhaps my strange dream experiences and that of some other Narcoleptics come from the fact that most of us don’t sleep that deeply at night. I do know that when I was on Xyrem, my dreams were unbelievably intense, I could not wake myself up from them easily, and I generally did not remember them much. It was actually kind of refreshing. This made me even more convinced that my strange dreaming experiences are firmly linked with my Narcolepsy, given that I went back to normal dreaming when given a medicine that supposedly gives Narcoleptics more normal sleep.
For some reason, my abilities regarding dreaming have grown and changed over time. I do remember when I was a child that I could not rewind my dreams, although I did have the ability to make lightsabers appear out of thin air (lol, I was a big Star Wars fan). Maybe I need to do some reading on the subject of dreaming, as these days my dreams have been making it hard for me to sleep at night.
Does anyone else have lucid dreams and/or strange dream abilities? Do you think that this is because of your Narcolepsy or is just something you can do? I know that some people buy books on lucid dreaming because they want to learn to do it, but I am a bit envious that most people don’t remember their dreams. Because as anyone who does remember them can tell you, some of them are so weird it would be better not to remember I think.
11 comments:
My dreams are incredibly different from my non-narcoleptic friends and family. They are so real, sometimes I get confused when I'm awake. For example, I can dream that I've read a magazine article, and when I'm awake I don't know if I actually read the article while awake, or if I dreamed about reading it. Once, I must have dreamed about reading a magazine that had an obituary for Meryl Streep. For about a week, I had assumed she was dead. It wasn't until I asked my sister what she thought about Meryl Streep's death that I realized it had just been something I dreamed.
It is incredibly exhausting trying to sort out some of the "realities" my dreams create, and I'm constantly second guessing some things that I worry were just dreams. There are times I'm not sure what really happened, and what I dreamed.
I haven't tried Xyrem, and I don't have Cataplexy, but I'm planning to speak with my doctor about trying it. I would love to sleep an entire night without the disruptive dreams that currently invade my sleep. If I never dream about a loved one's funeral again, it will be too soon.
I have narcolepsy and I sometimes experience a sort of lucid dreaming. Often when I'm dreaming I will realise that I'm dreaming (I'll think to myself this can't be real) and then because I know I'm dreaming I'll wake myself up. But I've never been able to control my dreams, other than waking myself. Makes me wonder whether I really knew I was dreaming or if waking myself up was part of the dream!
As for special powers, I never thought of that being associated with narcolepsy, but I do have the ability to fly sometimes, though I reckon this is common of non-narcoleptics too.
This is really hard to explain, but I’ll do my best. I have episodes of lucid dreaming with sleep paralysis. At first, I would become "conscious" that I was dreaming, but also unable to control any aspect of my dream, to move, or even to wake myself up. When I am able to open my eyes I am still "paralyzed" and if I am not able to "break" out of the paralysis I am "sucked" (exactly how it feels) right back into the same dream. This has progressed over time to include a sharp pain in either my right hand or both hands, and for whatever reason it is usually a dog biting down on my hand. The longer it takes me to wake-up the more intense the pain gets. The pain is gone as soon as I open my eyes, but if I am “sucked” back into the dream the pain is exactly the same and from the same cause. The really scary thing is that I told a Neurosurgeon and a Neuroendocrinologist about these “episodes” and neither sent me to a sleep specialist.
Thanks for writing this post - strange that we "connected" right before you wrote this post.
I too have the same kind of lucid dreaming experience. Before reading this article I didn't know that Narcoleptics have different kind of dreaming activities. Yes, I can also control my dreams which I don't think non-narcoleptic people can do. I can stop the on going dream if it is too much scary, I can modify (it is little bit difficult then to terminate.. i don't know why), I can pause and continue (like .. if i was dreaming good things and I awake . I can again continue with the same dream). Also I can explain the dreams from my mouth that I am going to see just after sometime closing my eyes and before complete sleep. I have also felt the super powers things quite vividly. The most super power dreaming experience happened to me is becoming Spiderman. Others are Jackie Chan, Jet Lee like Kung Fu stars fighting furiously. I haven't taken any medication of Narcolepsy coz I tried but the doctors I met with have little or no knowledge of it. It is insane that they couldn't figure out what was my problem. I didn't know about Narcolepsy just few years ago. I just came to know about it searching the Internet. It is really eye opener that lots of people have Narcolepsy not just me. It has been always hard that lots of people still thinks I am lazy and always tend to sleep. Anyways, it is worth to read your blogs. I will not miss a single article of yours and share what I feel. Really thanks for putting all stuffs here and keep it up!
I have not been diagnosed as narcoleptic, though I have many of the symptoms. I frequently experience very lucid dreams (without trying). Often, they build on something that happened during the day, but I can control them. I recently completed my Masters in Math Education and there were times, while taking higher-level math classes, where I couldn't solve a math problem while awake but I could solve it in my dream. Once or twice, I remembered how I dreamt it and the solution(s) worked. Other times, I can imagine a dream situation and, when I fall asleep, I will dream that. Also, I tend to dream right after falling asleep and if my sleep is interrupted, I'm often able to continue the dream.
I really enjoy a lot of my dreams. It's the nightmares that I wish were less realistic...
I also have "classic" narcolepsy and I indeed have the ability to control my dreams to some extent. I am generally always aware that I am dreaming, but none the less I have issues differentiating my dreams from reality. Like their is this one Physicians Asst that I work with and I don't like her. I don't know her but she may or may not have been really snide to me. Either in a dream or reality, so I stay away from her regardless. Back to being able to control the dream, if I feel the dream going in a direction that I don't like....a nightmare, I am sometimes able to redirect the dream, and I am even able to tell myself hey this is just a dream.
I was diagnosed with fairly severe narcolepsy with cataplexy (and obstructive sleep apnea) at the beginning of April. I'm 25 now, but I probably started having problems when I was 15 or so. It's funny, I never realized my dreams were abnormal (outside of when I dreamed) until reading an article on lucid dreaming but it completely makes sense. Like you, my dreams are extremely vivid during the day, particularly during sleep attacks in addition to waking up as I hit the snooze button and drop immediately back into REM. I have fallen asleep (almost always during a lecture or seminar) for literally half a second and lucid dreamed. I can recall nighttime dreams often, but not always in great detail. In waking/day dreams I am often aware I am dreaming, but I don't think I control them very often. This was actually a problem for me in highschool and during my undergraduate years as I would fall asleep after hitting the snooze button and dream that I was awake and getting ready for school in almost perfect detail. I don't usually remember these dreams very long unless I dwell on them, and it doesn't help that I didn't seek treatment until my short-term memory was completely shot. I am on Xyrem currently, and it does make my dreams much more vivid, although it is also somewhat jarring going from that deep a sleep to waking and vice versa.
I'm convinced, however, that there is an increased prevalence of this with narcoleptics. Normal people who try to induce lucid dreams will experience or attempt to experience classic narcolepsy symptoms (hypnagogic hallucinations and sleep paralysis). I actually found your blog when looking for proven connection between the two. Ironically, I am in graduate school for a PhD in neuroscience (I didn't actually know something was wrong with me until my 2nd year) and I might bring this question up to one of my advising professors, as it could give some insight into the psychology of dreaming and possibly be useful in narcolepsy research. Now I'm tempted to start my own narcolepsy blog, lol.
Sorry to double post, but just remembered that when I was 12 I had a dream after falling asleep in Spanish class except that it wasn't really a dream. Despite being asleep, I was fully aware of what was happening around me and that I was sleeping. My teacher asked me a question, I woke up and answered it, and went immediately back to sleep. Strange. Has anyone else experienced something like this?
I have been told to have severe "classic" narcolepsy. I have all the other not so wonderful side issues besides being sleepy all the time.
My sleeping has always been terrible, but since I was diagnosed almost a year ago and started taking meds for my cataplexy, I have the most realistic dreams EVER!
I sometimes have to ask a family member if certain conversations or things have happened, because I could swear having heard or taken part in family activities. Only to wake up confused.
Most of the time, more specifically at least 3 times a night, I will have very realistic nightmares. I have such bad nightmares that even though I KNOW I am dreaming I still have to scream to wake myself up. I also have been told I talk a lot in my sleep.
My Doctor has told me that there is nothing he can do to help my dreams/nightmares. I find that it is the most disrupting part of my night time sleep. I met a woman who said when she takes her ritalin to stay up, that she didn't have any dreams at all. Once she changed her meds she began the dreaming again.
I have naro/cataplexy and have had every experience the other people have posted i wil get ready for work (and hated doing it )only to wake up and relize its a dream ) and have 2 wake up and get ready all over again i woke up one night to find myself taking my fan apart w/ screwdriver and everything and woke up wondering what the heck i was doing(scary)... the more tired i am the more lucid my dreams i love being able to conrol my dreams i love being able to go back to a dream after waking up and going to the bathroom!!!LOL and to be able to stop the bad dreams the only dreams i cant stop are the crazy lucid dreams whithin the first half hr of sleeping they are terrifing i always have the same one that i am being abducted by aleins i never told anyone this b4 i know its too weird and i dont belive its really happening but it feels to weird at first i just feel like people are really touching me but then it feels like they start hurting me and i swear i can really feel it then i wake myself up ONLY TO BE SUCKED RIGHT BACK into the dream this happens like 4 or 5 times b4 i can actually wake myself up and move around for a little bit then the dream will stop this might be helpfull to people i find also when i cant wake my self up that if i move my jaw back and forth when i know im dreaming i will wake up exept when im having a bad lucid/cataplexy dream i will think im really up but awake to figure out i was still dreaming!!!!!!!!!!! when i have these dreams i can hear my surrounds and know im dreaming i will even try banging my hand on somthing to let people know i need help waking up i will see i faint vision of my hand leaving my real hand and i will know then that im not really banging it... CRAZY!!! i have like outter body experiences while dreaming!!!!!!!!!!!!! and this is also crazy i can control what i want to dream about most times....i have great sex dreams somtimes to they feel real and i have the best orgasoms in my dreams (i know this is weird but true!)ILL EVEN WAKE UP TO ACTUALLY HAVING ONE!! any one else have these symptoms????????????? get back!!! or even hear of them let me know so i know im not CRAZY!!!!!!!!!!
to me, there is a big difference between lucid dreams and hypnogogic hallucinations --- I know when I'm dreaming (that's lucid dreaming), the really scary part is when I wake up, know that I am awake, but am seeing something that I know can't actually be there, something that is dreamlike (like a giant spider on the ceiling). I do sometimes have hallucinations where I can't tell that it isn't reality, but this is usually because it's something that might actually happen (like someone playing loud music). I do sometimes have scary hallucinations of hearing someone in the hallway of my apartment right outside my room, having broken into my apartment, but I usually just tell myself I"m just hearing things...
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