My favorite Narcolepsy website

If you’ve been following my blog, then you can probably guess what website is my favorite Narcolepsy site.  It’s that site I mention so often that I’ve stopped bothering to link to it?

That’s right, it’s Talk About Sleep’s Narcolepsy forum. 

Many years ago I remember my sleep doctor mentioning the site to me, thinking that it might be good for me to hear from other Narcoleptics.  At the time, I didn’t follow through with it.  Why would I want to talk to other Narcoleptics?, I thought.  I’m doing fine.  I have my doctor – that’s enough.  It was only later when things got really bad for me that I sought out the forum for advice, and I’ve been going back ever since.

I originally joined Talk About Sleep (TAS) because I had questions on Xyrem causing depression and anxiety.  My doctor thought that the Xyrem wasn’t causing my depression, but I was sure that it was and after talking with some other Narcoleptics on TAS I was sure that I was right, as I heard that others had also had this problem.  Although in the end I wasn’t able to find a solution to my problems through the website, it was a relief to find somewhere to ask questions and talk to people.  Why hadn’t I joined sooner?, I thought.  This site was awesome!

Finally I had a place where I could ask any question I wanted about Narcolepsy, including things my doctors might not know about, like do many Narcoleptics have lucid dreams?  Since then I have often gone back to the site, and in the past few years I have tried to go back to the site often just to see if I might find a post of interest.  And often I have found interesting things.

I also discovered that I liked helping other Narcoleptics with their questions, if I could.  After all, this is what TAS is all about: people ask questions and other people bother to answer them…  Lately, since I started this blog, I’ve been trying to answer a lot of questions via the site because I enjoy this aspect of sharing the knowledge with others that others have shared with me.

So if you haven’t been to TAS, I would recommend that you try it.  Drop everything and go take a look right now!  It’s the best. 

You might not find what you are looking for (it is after all a forum, which by its very nature makes it hard to search to find the subject you are looking for), but it is a great resource and the only site I regularly check in relation to Narcolepsy.  It might not be a bad idea to stop by every now and then, just to see if anything interesting comes up.

I’m curious, do we have any TAS devotees among my subscribers?  (yes, all 18 of you :-) ).  I know that some people have mentioned in comments that they are from TAS, for example, Wolfie, but I thought there might be some more people as well…